Little Mix alum Jesy Nelson is opening up about her 9-month-old twin daughters' battle with a severe muscle disease. Nelson, 34, expressed hope that her baby girls, Ocean Jade and Story Monroe, would surpass their two-year life expectancy as they undergo treatment for Spinal Muscular Atrophy (SMA) Type 1, a hereditary neuromuscular disorder that causes progressive muscle weakness. "So spinal muscular atrophy is a muscular wasting disease, so they don't have a gene that we all have in our body," the singer explained during the Wednesday, February 4, episode of Jamie Laing's "Great Company" podcast. "Their muscles are now deteriorating and wasting away, and if you don't get them treatment in time, eventually the muscles will all just die, which then affects the breathing, the swallowing, everything. And they will die before the age of two." Nelson continued, "It's not OK, but it is what it is, and I just have to accept it, and now just try and make the best out of this situation ... And my girls are the strongest, most resilient babies and I really believe that they are going to defy all the odds." Jesy Nelson Brings Twins Home 1 Month After High-Risk Complications Nelson also opened up about her daughters having twin-to-twin transfusion syndrome (TTTS) during pregnancy. The infants were born prematurely at 31 weeks. "They had TTTS, which affects a rare percentage of identical twins, and that means, if it's when there's only one placenta that both the babies feed off of, and it's crap for both of them, because one will get more of the nutrients and one won't," Nelson explained. "But either way, doesn't matter. Even the baby that's getting too many nutrients, it still affects them. It's not good. And so if you don't get treatment for that, they will die. It's like, 95 per cent, that they won't survive." Nelson, who split from fiancé Zion Foster in January, revealed Ocean and Story's diagnosis last month. Jesy Nelson/Instagram "A few months ago, my mum noticed that the girls were not showing as much movement in their legs as they should be," she said in a video shared via Instagram. "[It] wasn't really a concern to me at the time because from the minute I left the NICU, I was told, 'Your babies are premature, so do not compare your babies to other babies. They won't reach the same milestones. Take them as they are.'" Nelson and Foster, 27, welcomed their daughters in May 2025 after a high-risk multiples pregnancy. "When the healthcare visit came, we were told, 'They look great, they're healthy and everything is fine,'" Nelson continued. "A few signs then started to show a bit later on that they were struggling to feed properly. It was getting gradually less and less and less. Long story short, after the most grueling three [or] four months and endless appointments, the girls have now been diagnosed with a severe muscle disease called SMA Type 1." Little Mix's Jesy Nelson Needs 'Necessary' Procedure to Save Unborn Twins Nelson said on the podcast that her baby girls are her "whole heart and soul." "Before, things that now seem so ridiculous to me that I used to worry about, I'd sit in bed and I'd cry and I'd feel sorry for myself, and I'd have days where I just wouldn't even get out of bed," she admitted. "And now, I don't have a choice to do that, because I have to just get on with it. It's s***. It's really f***ing s***." Nelson continued, "But at the same time, I'm just still so blessed because my girls are, they are literally superhuman, honestly, like, I look at them and every day they are happy, and I'm like, 'What have I created?' The s*** that they've had to go through, and they're still happy and smiling, and I'm like, that almost thing gives me even more strength to be like, 'Well, what gives me the reason to be sad?'"
Us Weekly
Moderate Jesy Nelson Shares Her Hope for Twins' Life Expectancy Amid SMA1 Battle
February 4, 2026
16 hours ago
4 celebrities mentioned
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