View gallery Image Credit: Emma McIntyre/Getty Images for The Recording Academy Celine Dion, the legendary voice behind "My Heart Will Go On," is continuing her battle with Stiff Person Syndrome-a rare and debilitating neurological disorder that has forced her to step back from performing. In May 2023, the 57-year-old singer canceled her Courage world tour due to complications from the illness, calling it a "tremendous disappointment." "It's not fair to you to keep postponing the shows," she told fans in a heartfelt statement, "and even though it breaks my heart, it's best that we cancel everything now until I'm really ready to be back on stage again." Despite her health challenges, Celine made two surprise public appearances in 2024: presenting Album of the Year to Taylor Swift at the Grammy Awards, and performing at the opening ceremony of the Paris Olympics-both moments that reassured fans and drew standing ovations. Still, concern for the Canadian superstar remains high. In mid-2025, false rumors claiming that Dion had died began circulating online, prompting fans and media outlets to fact-check the claims. Representatives for the singer quickly confirmed she was alive, urging people to be mindful about spreading misinformation. Celine's legacy spans decades, with five Grammy Awards, a record-breaking Las Vegas residency, and international fame cementing her place in music history. Her last full concert performance was in July 2019 at Hyde Park in London. Since revealing her diagnosis in December 2022, she's kept fans updated through statements and, most recently, a deeply personal documentary that chronicles her struggle with the illness. Here's everything to know about Celine Dion's condition, how she's doing today, and what's next. Celine Dion Was Diagnosed With Stiff Person Syndrome Celine shocked the world with somber news in 2022 when she revealed her Stiff Person Syndrome (SPS) diagnosis with an emotional video across social media, including Instagram. The rare condition, which often affects around "about one or two in a million people," is known to cause a series of neurological health issues, per John Hopkins Medicine. "I'm sorry it's taken me so long to reach out to you," Celine said in an Instagram video at the time. "I miss you all so much and I can't wait to be on stage talking to you in person. As you know, I've always been an open book and I wasn't ready to say anything before. But I'm ready now. I've been dealing with problems with my health for a long time and it's been really difficult for me to face these challenges and to talk about everything that I've been going through. Recently, I've been diagnosed with a very rare neurological disorder called stiff person syndrome, which affects something like one in a million people." What Is Stiff Person Syndrome? Stiff person syndrome can cause muscle rigidity and spasms, heightened sensitivity to sound stimuli and lights, as well as emotional distress that can cause muscle spasms, according to the National Institute of Neurological Disorders and Stroke. It is so rare, it can take years to diagnose and at present, there is no cure. "It frequently is associated with muscle spasms, which could be quite severe. These can cause falls, severe pain and significant disability," said Dr. Emile Sami Moukheiber of the Stiff Person Syndrome Center at Johns Hopkins Medicine, to CNN. "Falls from severe spasms are very common. These spasms can be precipitated by startle, severe emotions, cold weather." The truth is that the disease can manifest in such extreme ways that some folks with stiff person syndrome, like this young woman on TikTok, can't even walk on their own. How Long Has Celine Dion Been Sick? Celine has been struggling with SPS for over a year, as she also had to postpone her tours in April 2022. "I'm so sorry we have to change our tour plans for Europe one more time; first we had to move the shows because of the pandemic, now it's my health issues causing us to postpone the shows. I am doing a little bit better...but I'm still experiencing some spasms," she revealed via Instagram on April 29, 2022. The mom-of-three not only had to postpone the tour in April 2022, but she also was forced to do the same in December of that year as her condition had not improved enough to return to the stage. In April 2022, Celine said she was "doing a bit better", however, the recovery was "going very slow." And eight months later, sadly, Celine was not recovering at the speed she had hoped. The condition affects her ability to walk, use her vocal cords at "100%" capacity, and more. "I have a great team of doctors working alongside me to help me get better, and my precious children, who are supporting me and giving me hope," Celine assured her supporters in Dec. "I'm working hard with my sports medicine therapist every day to build back my strength and ability to perform again." The talented artist first came forward about the health condition in January 2022, ho